Reply To: Sensory CIDP?

October 29, 2015 at 5:00 pm

Lee, I was a semi-professional tennis player, surfed, and rode motorcycles too. This disease paralyzed me and I was a quadriplegic in 10 days. Being in good shape didn’t do anything for me, the disease isn’t impeded by our condition, good or bad.

Myelin can grow back to some extent at the rate of 1 millimeter a day, which is only 0.0032808 ft, this is agonizingly slow but there has been little that can be done to speed up the process, except for the very expensive and experimental stem cell transplant treatment. Axonal damage is another thing and you can read about it here:

I’m still wheelchair bound after 8 years. My recent Rituxan treatments have resulted in some recent improvements and I’m hopeful this will continue. I’m even contemplating renting a Trike to take on the road for a little cruise. Maybe in 2016.

I’m now riding an Invacare TDX-SP/CG, a far cry from what I was riding! I hope your strength continues to build so you can ditch the wheelchair.