Reply To: Ivig dosage/days of infusion?

January 15, 2015 at 3:00 pm

Don’t be nervous. I’ve been getting IVIG every 5 weeks for 5 plus years now, two days in a row = 4- hour drips. I’m not sure of the dosage. I’m just tired of going now. It’s getting to be old. I’m looking for an alternative that isn’t so expensive out of my pocket even though insurance covers most of it. I’ve been doing quite well with it. My symptoms are 24/7 neuropathy in my lower legs and feet with mininimal firing. You wouldn’t know I had CIDP if I didn’t tell you. I do deal with tiredness though and lay down every day to rest. I’m 56 years old and had GBS at age 46 – severe case and was treated with plasmapharesis for that. Had a set back in 2009 and was diagnosed with CIDP because I didn’t make the 5-year window after GBS and the neuropathy started up.