Reply To: CIDP? symptom questions

March 15, 2014 at 8:37 pm

Symptoms of CIDP often start with tingling or numbness in the extremities of the body. The hands, feet, and face are often affected first. In my case, numbness started in the buttock and travelled down my legs to my feet and up my abdomen to my arms and hands. My mouth went numb, mostly on the right side, along with my right cheek and eye. Some of my symptoms may have been due to the Miller Fisher Syndrome (MFS) variant I was told I have in addition to CIDP.

People with CIDP suffer from a wide range of symptoms that may include:
– weakness in leg, arm, and facial muscles
– tingling, numbness, creepy/crawly feelings, hot/cold, zingers
– problems with speech and swallowing
– pain in the muscles of the back
– shortness of breath
– decreased ability to move the eyes or parts of the face

Variants can make it more difficult to diagnose and treat neuropathies and an experienced neuromuscular specialist can make a difference.

Please read the following publication for more details:

Additional info can be found here: