Reply To: Tremor

January 31, 2014 at 1:38 am


Nice to hear I’m not the only one going through this issue.I have experienced tremors for the past 2-3 years now and they are only getting worse. It use to be just once in a while now I have tremors daily but they only get worse when my heart rate increases and if I get nervous or exercise. I asked my doctor he said it could be a side affect from me getting better. I have been on IVIG for 7 years now taking a double dose every 4 weeks, the past half year I have been able to extend my IVIGs till 9 weeks between doses. I feel great. I started exercising and lifting weights I see all my muscles coming back and I can finally run again. I ran for the first time in 9 years last summer. I never thought the day would come but I believed and fought. I hope we all will get through this terrible disease. Glad to have this forum for support.