Progressing Slow

Hey there

you were hit with GBS only a couple of months after I was. Did your symptoms come on quickly or rather over a longer time span? As far as I know, CIPD is slow to hit you. GBS comes on rather fast. Hours or days as opposed to weeks or months. Some days will feel as if they are worse than others. There are days I feel as if everything weighs a ton and even my hair dryer is too heavy. Or I am too tired to bother even trying to function. Other days I feel much better.

To help lift your spirits, think about what you have noticed POSITIVE lately about your recovery. What have you noticed that is better? Even a small thing, something that may seem so insignificant that you havent even really taken note of it. When I realize that I can do something easier or better than I could just a couple of months ago, it makes me feel so good! If you ahve been particularly active lately, that could also lead to your body begging you to take it easy. Stress is also a big culprit. Even female hormones! Try to rest a bit, put your feet up, watch a movie, and see if that helps. I always tell myself I will feel better tomorrow, and if I don’t or if I feel worse, I promise myself I will call a doctor. 99% of the time, I wake up and do indeed feel much better. Take stock of what is better and let yourself be happy about that, then rest and see how things are otherwise. If it keeps up, call your dr. and get in to see him/her.

HUG!
Hope this helps a little.

I think that one thing you have to look at is that if, without treatment like IVIg, you are getting progressively worse. Besides the bad days, do you seem to be slipping back to where you were when you first got GBS, and would you say that instead of either getting slightly better over time, or possibly staying the same most of the time, you are possibly getting weaker as time goes by? That would [I]generally [/I]be a good indicator that you could expect it to possibly be CIDP

It was not until my second Summer that I thought the strenght in my arms was finally helping me do what I wanted. It took a long time before I could control the gallon of milk. I think they weigh 7 pounds. My fingers are still weak. It was also that same year that I felt I could get myself up off the couch without getting stuck. My left side is still alot weaker than my right and it used to be my stronger arm and hand. Use water bottle to do arm shoulder and wrist exercises. You can gradually add water to them for weight as your strenght comes up. I used the hand weights and they were easier to hold on and balance because there was not water moving inside. Just that movement trying to twist my wrist was hard at frist to control but it got easier. Two years after my onset, according to my Journal, I was able to lift and cary my laundry basket. Don’t give up, just don’t get hurt either!

miss,

a comparative ncv will let you know if you are still under a real attack [Rx is ivig] or just overdoing it [Rx is mucho rest lying down]. take care. be well.

gene gbs 8-99
in numbers there is strength