How harmful to stop/start/stop IVig?

    • October 10, 2022 at 7:24 pm

      <p style=”text-align: left;”>My husband has been getting IViG infusions on and off for the last couple of years. And when I say on and off, it was never by his choice. We are, once again, in an off. He believes that any abilities he loses during this time he will never get back, like in MS. Does anyone have any advice?</p>

    • October 11, 2022 at 4:33 am

      Its not that you won’t get it back, you’ll have to start all over again. You can’t stop, why would you do that? I tried spacing out my infusions from two days every three weeks to two days every four weeks. I lost all my gains in health. Now I’m back to the three week schedule. Stay with it, it may be a life long thing, it beats being a cripple.

    • October 12, 2022 at 12:18 pm

      Thanks, Ron. That is exactly the schedule he was on, two days every three weeks. But then insurance switched and doctor needed more paperwork and now insurance says they aren’t sure he still needs it. Docs are still battling for him but it has been months without. Very frustrating!!