Take care, Blu… I hope you have a speedy recovery…

Aimee

Welcome back home and keep in touch:)

Hi Blu,

Best wishes for a speedy recovery from your surgery. Hope to see you here soon.

Blessings,
Barbara

Blu,

you were going through quite a rough patch for a few moths before the rupture, how are you feeling now after the surgery i.e. how did the anesthetic affect you, was there infection that spread?[SIZE=2][FONT=Verdana] Glad you’re back and on the mend. [/FONT][/SIZE]

Blu,

So sorry to hear of your emergency. Sending prayers for your speedy recovery.

Hugs,
Flossie

Greetings SIL,

I’m so glad you found us quickly. To be honest, you have a long road ahead of you, but with the shared knowledge and support here, you will be okay.

I’m sure others will respond, but from what I know is that pain killers will not help this type of pain. Neurontin, Lyrica or Cymbalta may be of help. I have been on neurontin before and it does help. Now I am on Cymbalta as it helps with the mind for depression and the body for these strange nerve things. One main thing that will aid you the most is lots of rest, rest and more rest. This will also be part of your new life now – more rest.

I still cannot handle hot water and my neuro said no to hot tubs. So you might be careful with the temp. as maybe you aren’t really feeling how hot it is.

Let us know how you are doing. 🙂

P.S. Do a search for the meds and you’ll find lots of info. posted here.

Welcome SIL!

Glad to hear you are back home again. I do recall the back pain vividly, oh what horrible memories 🙁 . Chrissy is so right about resting, it is soooo important. Make sure you are ready to go to work, I know some of our members actually start off going half day for while before trying to go full day. Wishing you all the best.

Hi SIL,

My experience shows tiredness after ‘hot’ water bathing. Yes, Chrissy I agree with you I too cannot handle hot water. I have to take rest for about 15 to 20 minutes to come to normal condition after bathing although I have recovered more than 95% from GBS.

Take rest and do PT under the guidance of experienced Physiotherapist. I hope you will mostly recover after 4 to 6 weeks by rest and proper PT. Just let us know.

Take care and be positive

hi sil & welcome,

actually neurontin is safer than lyrica. take care. be well.

gene gbs 8-99
in numbers there is strength

SIL,

Welcome to the forums and to our family 🙂

I just recently switched from Neurontin to Lyrica after 30 months on Neurontin, wish I had done it sooner. So in my case Lyrica has done wonders. I am glad that you are improving, keep coming back here. Take good care of yourself.

Jerimy

lidocaine was mentioned in a thread about going to the dentist. I beleive that thread said not to do the lidocaine, but the novacaine was ok. Better check further to make sure it is ok!

[B]Posted by Suzanne
Member Join Date: May 2006
Location: Northern Virginia
Posts: 71 [/B]

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Danilo,

I commend you for coming to this forum to research the issue for your patient. I wish every heath care practictioner was so diligent.

I also wish I could be more specific, but I recall an article by a dental surgeon regarding research about Lidocaine and Gillian Barre Syndrome. I believe the conclusion was that with some patients that Lidocaine can cause GBS by breaching the blood/brain barrier.

Perhaps some of our more senior members will recall the article from the old forum. Gene, do you recall the reference about this one?

[B]Hope this might help some![/B]

kit,

i can’t remember the particular thread, but, as you said, i believe lidocaine is a no no. take care. be well.

gene gbs 8-99
in numbers there is strength

Not many people here seem to take pain killers – most are on other drugs, but for me, Dilaudid does the trick.

I only take a small amount now – 2 mg when the pain gets to the point it keeps me awake or makes it impossible to function (this happens about twice a week).

I was taking 2 mg every 2 hrs for about 3 weeks, when I was really sick and the pain in my back was unbearable. Yes, the doctors told me about the risk of addiction, but at that point, it was the only thing that relieved the pain, so I didn’t really care. Fortunately, I did not get addicted, and my docs continue to give it to me to use “as needed”. This is such a life saver for me.

Otherwise, I’m on Effexor and Clinoril. Between those and the occasional Dilaudid, the pain is under control, and continues to diminish.

I wish the same for you.

gene It took me a while to go back thru all the threads but it was titled with Dentist in the title and I have been dealing with the Dentist recently.

I never can remember what antibodic are good for the people with GBS and DIDP either. Maybe we should have a thread for just those kinds of important information.

I consider myself very luck not to be feeling much pain….only the numbness and tingling and once in a while a sore muscle. I am able to take Motrin for that and it works for the sore muscles. Takes the edge off the tingling for a few hours.

Hope everyone is enjoying their Summer! 😎

The article about Lidocaine is in “Anesthesiology- The Journal of American Society of Anesthesiologists Inc” in July 2002.

I think the link is [url]http://www.anesthesiology.org/pt/re…VUHncsf61urcJSa!276062241!-949856144!9001!-1[/url]

I got this off of an old post from canuckgirl1 in the “old” forum, in case it’s possible to access this info.

The information is over my head, but might be worthwhile bringing a copy to your anesthesiologist to interpret.

Thanks so much for posting that source! I think it is a good idea to have a folder of these kinds of articles. I have found that they do not have time to read everything and if they don’t think they have any patients with GBS they don’t use that information often and it gets forgotten!

Well, I just tried the link that I posted re the Lidocaine and it is apparently outdated.

Maybe there is another way to access the Journal articles.

LadyKit,

Yes, I agree about having a file for these things. I try to print out the ones that I find helpful, but haven’t gotten around to organizing them yet, so I have things, but have trouble finding the ones I want.

I found something else that references a link on the old GBSFoundation forum website. don’t know if this one is still vaid either. [url]http://gbs-cidp.org/forums/showthr…light=Lidocaine[/url].

Sil,

Welcome to this site and I am glad you found it quickly. I take Lyrica for the pain and find it to be great. I went 2 years just putting up with the pain but then realised that I wasn’t functioning as well as I could. Now taking Lyrica I am back to work “Part Time” and the pain level is good. I still get a burning feeling in my feet but this is when I get to the point where I have done way too much. You need to rest as much as possible. It is important in keeping this illness under control.

Good Luck and best wishes
Debbie