Zesty

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  • Zesty
    September 3, 2016 at 12:36 pm

    At age 46 in 1991 symptoms began in toes in early morning and by noon I was paralyzed unable to speak and in the ICU; in addition I had extreme headache; diagnosed spinal etc; 2 weeks in hospital and 5 plasmapheresis treatments; went home able to stand with assist and sit; only physical rehab available was done at home/fmly from old nursing text books and library info.
    Months before I could walk unaided with canes; years before I could walk without looking handicapped. I am very grateful and blessed at age 71 w in own home.
    Residuals: migraine, early menopause, periods of fatigue, neuro aches arms/legs, muscle weakness, absence of reflexes, feet and fingers; swallowing and speech. Lifelong phys and gen health enthusiast. Sinus infections and GERD prior also arthritis.
    Other autoimmune diagnosises and labs since. Plaquenil this past year for AI connective disease. Anyone else with additional autoimmune ?

    Zesty
    March 6, 2016 at 4:20 pm

    Hello
    I am widowed female b. O2.26.1945 and had G.B. With plasmapheresis treatments over the 2weeks in hospital; about3 months to stand and walk with canes and soft fabric midriff body brace. Rehab on my own because ins did not cover even as outpatient June 1991. Stable ambulatory after second year. Residual issues of varied discomfort(pain), hands and overall strength varied, fatigue, and went thru early menopause however the periodic hot flashes sweating for “acceptable” quality life. Endurance compramised. Not return to work but finished raising my family (and spouse) lumpectomy for breast ca with radiation. Osteopharesis with surg repair of rt hand/ulna/radious fracture and revision surgery the next year and total hip two years ago. Recovery great esp hip.
    5’2″ and 110 wt. o.k. health even as I went through years home care of my handicapped husband Was 6’6″ and two hundred fifty pounds.
    I have been diagnosed with multiple autoimmune over the years until lab and symptoms and extreme bedridden fatigue the past two years …..now connective tissue lupus
    AND still thriving! Hard to believe sometimes.
    Cheers to your recovery. Hope your pain decreases. I think hip recovery appears to be easier ? I see from so many friends the longer time and more pain recovering so hopefully you wiil be more comfortable real soon!