ZEN172172

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  • ZEN172172
    February 28, 2018 at 3:24 am

    Hi I had Miller Fischer last year.The double vision lasted about 2 months and was scary. However keep faith and with prism glasses which correct it you can even drive a car legally and it’s quite safe. Bit by bit the general symptoms decline and after about 6 months things become more normal. It took one year to be signed off but I still have a slight tingle in my finger tips. Vision is 20/20 . I was lucky to avoid breathing difficulties and was not on a ventilator. Good luck and if you have questions happy to help

    ZEN172172
    January 14, 2017 at 3:59 am

    Hi
    Seems between the rock and the hard place and I sympathise.Mine was cut and dried full on symptoms albeit GB/MF mixed. I had two neuro specialists very familiar with the illness as it is a teaching hospital. I had one junior doc visit me by agreement taking detailed notes on my symptoms for his own use and thesis so it seems a different world to yours sadly. I am not qualified other than by my own experiences to advise you but I really suggest you keep behind it for your own safety.

    David

    ZEN172172
    January 13, 2017 at 7:56 pm

    Hi
    Read my post ” lucky escape” my age is different but I was fit and got away with it because I acted immediately and had IVG in 7 days of symptoms. When you get there push them hard to determine diagnosis and don’t let up until you are discharged.
    It sounds pushy and it is but it’s your nervous system and as Jim says once it gets going on you it is vicious and can damage your life.

    David

    ZEN172172
    January 11, 2017 at 7:16 am

    Jim,
    I am so sorry to hear that you are still chair bound. My reason for documenting my situation was to give my own opinion from my own experience and it just seems logical to me that given IVG stops the T cells doing more damage the longer you leave it the more damage is done. In fact here in UK there are no clinical staff on weekends which in most peoples opinion is crazy. In my case I lost these two days before the IVG was administered otherwise it would have been 5 days from contracting the syndrome to IVG. Those two days were exponentially bad and the difference from Friday to Monday morning when I saw Consultant was frightening. This is what I base my opinion and advice upon.
    I really wish you all the luck in the world Jim with your recovery as this is a terrible thing to happen to anyone and it seems hardly anyone in the general public has even heard of it, I had not.
    Regards
    David

    ZEN172172
    January 10, 2017 at 7:34 pm

    Hi
    following on from my post above Jan 11th left eyelid worked on its owm followed today the right one startedto open when asked.This on is a bit less thn the first. Ihave read a lot about IVG on here and risks involved. My own view from my limited experince here is get it as quick aspossibe because waiting seems to allow untold damage on an exponential curve and surely must be worth the risk. I waslucky so far.
    When doesoe start light excercise asi dont wat to do damage a opposed to good ?