Zeinab

Your Replies

  • Zeinab
    January 13, 2019 at 8:54 am

    That is supposed to be CSF NOT CAR😁

    Zeinab
    January 12, 2019 at 11:49 am

    Questions to you all about the CAR protein results:
    1. Is it total protein elevation result or are we talking about one specific protein in the CSF? If one specific protein, which one??

    2. How elevated does the total has to be?

    Zeinab
    January 7, 2019 at 11:12 am

    GH,

    I did have a spinal tap and to be honest with you the results were never discused with me but I assume they were negative. however, I know sometimes a negative spinal tap is possible; in addition, I was on prednisone for 2 months prior to the spinal tap. so I am wondering if the resluts were affected due to the prednisone.

    Zeinab
    December 30, 2018 at 2:15 pm

    Thank you Mark for your advice. This neurologist is my 2nd one who couldn’t give a definitive diagnosis, which made me very frustrated. I understand that it is not easy to reach a diagnose when ones have the most weird symptoms, but I was under the impression that doctors are suppose to go the extra mile to help their patients and not just give confusing statements, guess I was mistaken!!😔

    Zeinab
    November 23, 2018 at 3:03 pm

    Hello everyone,

    Had my spinal tap on Wednesday, it went fine but I have a terrible headache ever since. It’s relieved when I lay down, but it’s unbearable if I sit or stand.

    Zeinab
    November 7, 2018 at 12:17 pm

    Hi Kathleen,

    Sending prayers your way to find relief from the agonizing pain you are enduring!
    I’ll keep you posted on my situation once there is news.

    Zeinab
    November 6, 2018 at 7:45 pm

    Hi Kathleen,
    I am sorry for your suffering again from this and I hope you find someone who will listen and help you quick!!

    I have been suffering for over a year now and I went through SO many testings and procedures (angiogram, upper endoscopy, cholecystectomy and pancreatic neuroendocrine tumor removal) hoping that they find what’s wrong with me, unfortunately, that was not the case. All this was done in Qatar, where I was working as a teacher. The neurologist in Qatar said this is ALS despite the fact that my symptoms (i. e. pins and needles, tingling, prickling, areflexia) did not match ALS. I finally came back to the states, visited my PCP, she transferred me to a neurologist and put me on low dose prednisone to help with weaknesses. It helped a little but the dose was too low. meanwhile my neurologist conducted all his blood work, EMG & NCS. the NCS & EMG showed abnormalities, however, he was not able to reach a diagnose because I didn’t fit neatly in any one box. So, he referred me to see a neuromuscular specialist who ordered a gamit of blood work as well, in addition to the blood work he wants an MRI of the brain and a lumbar puncture. that’s why I was concerned about the lumbar puncture test with me taking the prednisone and nothing will show on it and I am back to square one.

    Zeinab
    November 5, 2018 at 8:56 pm

    Thanks, Jim!!

    Zeinab
    November 5, 2018 at 2:37 pm

    This a question for anyone who had a lumbar puncture. My neurologist ordered a lumbar puncture, however, my primary care doctor put me on a low dose of prednisone (10 mg/day) for 2 months but I ran out of my prescription 13 days ago. so my question is, would the prednisone alter the results of the CSF??

    Zeinab
    November 4, 2018 at 11:06 am

    Thank you, Jim! I am hoping that my new neurologist will be able to figure whatever this is and give it a name.