John Moore
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March 13, 2019 at 11:18 am
Hello to everyone! I have read your posts and hope that you are all doing better. I came down with GBS in Aug of 2018 and was hit pretty hard. I spent most of my stay in the hospital in ICU. When I was finally able to move on to a therapy facility, we chose to go to Sheperd Center in Atlanta. I do believe that they gave me life back. It was definitely boot camp! I have been home for 2 months and as you all know, lower legs, ankles, feet and hands continue to be an issue. I can walk with forearm crutches but still have to use the chair for long distances. I do hope that i continue to improve as doctors have told me, but I am fully aware that 100% recovery may not happen. I am very thankful for for where I’m at considering where I started. It took both treatments to stop the progression and as bad as I got, I know it could have been worse. I don’t have any insights into treatment but I do know that if you have a choice of rehab facilities I recommend Sheperd center. Their positive attitude and availability of services are amazing. I wish all good luck with your recovery!
March 4, 2019 at 6:46 pmI’m 7 months since being diagnosed. I just finished 2 and a half months in sheperd center rehab and am now home. My main problem is feet and legs. IVIG did not stop the progression and had multiple plasma exchanges. I was on a ventilator for some time and feel pretty good about being able to do hat I can. I can tend to my personal needs but walking is tough. Staying positive is the only thing we can control and doing the most with what we have and what we get back. I hope you progress quickly since yours did not involve your whole body like mine. Like you I was completely healthy at the onset. Good luck!
