WayneD

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  • WayneD
    January 24, 2018 at 2:42 am

    Want to thank everyone for there responses to my questions.
    However I say this as calmly as humanly possible.
    I WAS MISDIAGNOSED WITH GBS. That was not my ailment.
    I have SDAVF which stands for Spinal Dural Arteriovenous Fistula (SDAVF).
    Had two surgeries on my spine to correct it now I have to learn how to walk again.
    All the time waiting for GBS treatment and the worthless treatment itself worsened my condition.
    Make sure your doctors are more thourough then mine was.

    WayneD
    December 30, 2017 at 1:01 am

    Three days ago my symptoms got worse. They didn’t move up my body, they were additional muscle weakness in my legs to the point I had to be hospitalized.
    I thought the desease had reached a plateau because there was no change in several weeks but in three days, I had muscle weakness to the point of not being able to walk. Is anyone familiar with this type of thing happening?
    I’m new to this so any help appreciated.