Your Replies

  • May 30, 2008 at 1:31 pm

    Dear Gene,
    I just can’t believe this terrible news. You and I started chatting many years ago and the help and advice you gave me has got me to where I am today. I remember the laughs we had about us not being able to walk on the sands, it was you who got me onto the neurontin, which turned my life around.
    Your work on this forum has been outstanding, so many of us turned to you in our time of need.

    You will always remain in my heart Gene, god bless you and Phyllis and all your family, I pray that God will give you all strength and courage in the coming weeks.

    Till we meet again, your friend


    March 18, 2008 at 1:54 pm

    Happy Birthday to my dear friend Donna.
    I hope this year will bring you good health, you certainly deserve it.

    Much love from your mate in the UK

    January 22, 2008 at 12:42 pm

    Thank-you friends for your birthday wishes. I had a wonderful birthday with all the family. Even though it was the big 50 I have never felt better!

    Love to you all

    May 26, 2007 at 6:05 pm

    Dear Donna,

    What terrible news, and what a shock for you all. I can’t imagine the pain you are all feeling at the moment. I pray that you can all get through these next few days, especially Sunday.

    You will all be in my prayers.
    Your loyal friend

    April 30, 2007 at 12:46 pm

    David, I’m so sorry to hear your sad news. My heart goes out to Jane and all the family.
    I have sent you a private message, hope it helps.

    Much love

    March 10, 2007 at 12:00 pm

    Happy Birthday to my dear friend Donna.

    Put on the diamonds Donna and enjoy your party, you deserve it chick.

    Remember, Frank and Marge will be toasting you in heaven.

    Lots of love


    March 6, 2007 at 1:04 pm

    Happy Birthday to my dear friend Sue!

    Hope you have a fab day with all your family.

    I promise I will pop in to see your mom very soon. Can’t wait for her to get the kettle on and all those lovely family pics out.

    Take Care

    February 28, 2007 at 1:56 pm

    Hi Gene

    So glad to hear that you had a wonderful vacation. The pics are lovely. How handsome you look!
    My mother did 3 cruises with my father before he died and she told me they were the best type of holidays by far, she said she never felt so pampered!

    I wish you and Phil many more.


    January 22, 2007 at 9:19 am

    Hi Guys

    Thanks so much for my birthday wishes it was a lovely thought. Seemed very strange not to get a mail from my dear friend Marge, always had a mail on my birthday, gosh how I miss her, can’t imagine Donna how your feeling, your in my thoughts.

    Had a lovely birthday surrounded by family, even my son who is in the navy got leave, I’m so lucky.

    Much love

    December 11, 2006 at 6:08 am

    I have not been able to visit here for many months and when I did this morning I see the terrible news about Marge. I’m in shock, can’t believe it. My heart goes out to Jessica and family and also to Donna.
    Marge was a wonderful friend to me, she helped me so much many years ago. We had our daughters expecting at the same time so many e-mails were past back and fro to exchange all the latest news.

    She will never be forgotten and will always have a special place in my heart.

    God Bless Marge


    August 5, 2006 at 7:32 am

    Hi Pritt

    I know what you mean I’m exactly the same, never know if its peri symptoms or post gbs symptoms.
    I have found a great site which has really helped me, I now know I’m not losing it, but whats happening is normal lol (husband might not agree) :rolleyes:

    The web address is [url][/url] click onto message boards, and scroll down to “menopause” also the womans health boards are excellent. I use these boards frequently, have had some great advice. Mind, no good asking about GBS, no one has any idea about that,come to think about it nor does any of the doctors I have seen recently regarding my foot so thank the lord for this site!!


    ps Hope it helps, let me know.

    July 24, 2006 at 2:11 pm

    Hi Guys

    Sorry but I have to vent, I’m so frustrated, and so angry, so here it goes!

    About 2 weeks ago I was getting up from the sofa when my foot slipped on the rug and my foot went into the leg of the coffee table, separating the toes. Now I’m always getting into trouble for going around bare footed, but even the lightest of shoes causes me pain, as many of us know.

    My toes quickly became swollen. My son Marc came over (he’s a A&E nurse and paramedic) and told me “we don’t do much for toes, just strap them up to make them more comfortable” I was relieved as I did not fancy a trip to the hospital.
    A week and half later I’m still hobbling around, when my husband said he really thought I should go and get it x-rayed. Had to agree that it did not seem any better, in fact the pain was just as bad as when I had done it.

    Off to A&E where I was examined, had an x-ray, which confirmed 2 fractures in toes and 1 in the foot. Now here comes my vent……………….

    Explained what happened a week and half ago.

    Doctor….. We don’t do anything for toes, why don’t you walk on your heel? It won’t heal if you walk on it.

    Me…. I can’t walk on my heel, have no strength in my ankles or feet to do that.

    Doctor…. Why? Everyone can walk on their heels?

    I then explained that I had GBS in 1968, took 4 years to walk, slight relapse 2000 etc etc

    Doctor…… Who said in 68 you had GBS?

    Me…….. A Neurologist and several other doctors.

    Doctor….. How did they know that?

    Me……. well I was paralyzed, they did a lumbar puncture, and that confirmed it.

    Doctor…… How did the lumbar puncture comfirm it?

    Doctor…… You sure they said it was GBS?

    Me….. yes positive, the neurologist confirmed this again in 2000, when I had a slight relapse.
    In 1968 they took spinal fluid and the protein was elevated, it was very high. I was in hospital for over a year, and I told you it took 4 years for me to walk.

    Doctor…… How did it affect you?

    Me…… It affected my legs, arms, the only thing it did not affect was my breathing. I was very lucky there.

    Doctor…… well thats very rare if it affects your breathing.

    Me…… under my breath………are you joking

    Doctor…… You sure it was not polio?

    Me….. No not polio, I’m sure.

    Doctor…… Well your legs are showing muscle wastage, and your ankles are very thin, not GBS.

    Me…… Look, I had Guillan-Barre Syndrome, not polio. I had flu beforehand on both occasions, and then the paralysis started in the extremities. Please get in touch with my doctor if you need to confirm my diagnosis, she has all my medical history.

    Doctor……. well, your toes will never heal if you walk on that foot, you must walk on your heel. Stand up now and let me see you walking on your heel…..please, like this. He then walked up and down on his heel.

    Me………. Getting up and heading straight out of the door, only to be followed by another doctor who was in the next cubicle and asked if he could have a word with me. Seems he heard everything and suggested that I use crutches for a week. Then he said I was to go to fracture clinic, if no improvement they will then plaster my foot, not a normal procedure but the best thing for me under the circumstances. I didn’t know if to kiss him or cry on his shoulder.
    So here I am with the crutches, trying not to put the foot down, going Thursday to fracture clinic…………..please pray that I don’t see the same doctor because I may not be able to control myself if he mentions heels again…………. and you just might see me on the BBC news making history!

    Sorry to go on, but I get so fed up of having to explain why I can’t do certain things, especially when people say “well you look normal to me” when they are looking at me from the waist up argh!!!!!!!!

    A feeling a little better

    July 3, 2006 at 4:26 pm

    Sandra, I am so sorry to hear about your husband’s passing, my heart goes out to you and your family.

    One thing you have now is your memories, no one can take them away from you.

    With love

    June 26, 2006 at 6:58 am

    Happy Birthday Marge

    Can’t believe I have missed your birthday Marge, I hope you really good one, you sure do deserve it.
    Since I have been back in the UK life has become so hectic, most days are filled with caring for my grandchildren, school runs, dog walking, mind you I am getting so much fitter, and really love my “new life” now I know why I left Spain lol!

    Take Care my friend, and here’s to your next one (promise I will be ontime next year)

    Lots of love

    June 5, 2006 at 5:44 am

    1. Go to bed and listen to the rain

    2. Watch TV

    3. If its raining in the summer months, walk in the rain with my husband, its so romantic! If its cold which it normally is in the UK, stay in bed, that can be equally romantic if you know what I mean!!