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  • February 2, 2018 at 4:59 pm

    GH, that has been so much of our frustration. He didn’t have a regular neurologist treating him as he was transported back and forth between two separate hospitals. So we have been trying to get him established with a neurologist recommended by his general practitioner, but they wouldn’t get back to us. Then we finally got an appointment for next week and the neurologist just changed it to mid-February. Are there services/people that can assist with these types of challenges we are facing? I am looking into Electra’s suggestion about social workers.

    February 2, 2018 at 3:44 pm

    Electra, thank you for the suggestions.

    GH, he won’t see his neurologist until mid-February. He hasn’t received treatment since he was released from the hospital in May 2017. We didn’t get a lot of guidance from the hospital once he was released, nor what to expect for the future. Pretty much all the hospital informed us was that he would have an increased probability of getting GBS again in the future, since he already had it once. That statement has created a ton of anxiety for my parents and family.