GH, that has been so much of our frustration. He didn’t have a regular neurologist treating him as he was transported back and forth between two separate hospitals. So we have been trying to get him established with a neurologist recommended by his general practitioner, but they wouldn’t get back to us. Then we finally got an appointment for next week and the neurologist just changed it to mid-February. Are there services/people that can assist with these types of challenges we are facing? I am looking into Electra’s suggestion about social workers.