Rereading my friend’s note, he specifically mentioned Dr. David Cornblath at Johns Hopkins, so you might try to contact his office.
Again, Good Luck!
Hi Kay Lyn,
You asked a great question that the GBS|CIDP Foundation tends to avoid. They don’t recommend any particular physician or group, but do list a number of good GBS Centers for Excellence across the country. Here’s a link to that list: https://www.gbs-cidp.org/support/centers-of-excellence/?fbclid=IwAR1lahwH10oA8gJlVYxtnCxPmGFJCXbfcl1s4WliknIGF-tSzB4i7_xEJqk
I had GBS 15 years ago (when I was 46 years old, now I’m 61), and it took me 6 months to get mostly back to normal, and probably another 6 months to feel completely recovered. I still have tingling in my right hand occasionally, and that’s what brought me back to the Foundation this week. I’m in week 4 of recovery from a persistent flu virus, and my nerves are reminding me of that. I probably do not have a recurrence of GBS, but if the symptoms persist, I want to understand my options. I came looking for a good GBS neurologist in Chicago, since mine retired 5 years ago. The folks in the Foundation recommended I contact the local chapter, and would likely recommend you do the same in Denver. Perhaps you’ve already done that.
Last, but not least, a friend of mine had GBS a few years ago and was treated at the Cleveland Clinic which did a great job for him. He also said he heard very good things about Johns Hopkins (which is the first Center of Excellence that the Foundation’s list). I hope that helps, and that you are able to get the treatment you need to fully recover.
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