Rosebud

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  • April 6, 2019 at 10:56 pm

    (When your new diagnosis is so rare that the last update was two years ago)
    I want to get a second opinion, but I need to start treatment very soon. I’m losing the use of my right arm more and more. Didn’t I read somewhere than MMN patients don’t have pain? That’s horse hockey. It’s painful and demoralizing. #rare #rareuntilitsyou #MMN
    Lord, I call upon Thee, hear me. Hear the voice of my prayer.