Rick

Your Replies

  • Rick
    March 1, 2016 at 2:21 am

    Jk: the study is no longer double blind. If you qualify, you will get the real thing. Did research and reached out to the NW team to double check.

    Rick
    March 1, 2016 at 1:58 am

    Theressat: Whenever I walk more than I should or overdo during the day, I also get blurry vision later on. I think all muscles are somehow involved, probably also eye muscles. After hours of rest it goes away. Days with more tremors also make my vision blurrier.
    I can relate to what you describe in your toes. It feels like someone is trying to pull them out. Painful. As for dragging my body, yes, it’s how I manage to get some things done. Hope things get better for you.

    Rick
    February 26, 2016 at 2:53 am

    Thanks Jim and midilance for your responses. The fatigue and lack of energy have taken over many of the other prominent symptoms. My Drs do know. They decided to discontinue the Cellcept, thinking it might be causing it. But after 3 months only on IVIg ( have been on it for 5 years now), nothing has changed. I have to drag myself all day long. Extensive wok up has been done ( hepatitis, EBV, blood sugars etc etc) all normal. So CIDP seems to be the culprit.
    After reading many posts it seemed to me that the lack of energy and fatigue were seldom mentioned. But as we know this disease is different for everyone. Your responses were very helpful. Thx!