PTGrowth

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  • September 17, 2015 at 1:23 am

    Hi GH. I’ve come to terms with the fact that it is possible I may have CIDP, and it’s too early to tell at this stage if an acute attack will come back. My symptoms seem to fluctuate a lot. I’ve decided to not test my symptoms every day (as this raises anxiety when I have a few days that are off), and do regular 2 week tests with my doctor to measure progress (including: 2pt touch discrimination, pro-prioception, deep tendon reflexes and vibration testing on feet). Over the next few months we’ll see how things progress. All the best!

    September 17, 2015 at 1:15 am

    Hi Angels Abound. I’m glad you finally got diagnosed and are back on track! So you have experienced many of these symptoms as well? My main concern was residuals and joint pain that last 24 hours or more; did you ever have trouble like this? If so, it’s good to know I am not alone. Strangely, my neurologist did not prescribe me IVIG in my recovery. Did you get a second bout of GBS, or did CIDP come out of remission? All the best and speedy recovery!