Peter Powell

Your Replies

  • April 10, 2020 at 12:41 am

    Hi, thankyou for your kind words. After being pretty healthy throughout my life, being diagnosed with this, or something else? Like everyone else is a huge shock.

    Waiting to see any signs of improvement, but still a bit early I guess.

    My major concern is the impact on my wife who is from New Hampshire in the US. We had thought of going back at some stage and settling in your wonderful country. Not sure what the future holds now.

    Thankyou for the links, continuing my research and trying to stay positive.

    April 9, 2020 at 7:41 am

    Hi, I’m new to this forum. Originally diagnosed with ALS about 2 months ago, however my doc re-did the NCD & with a brain scan, said my results were “ abnormal” for ALS. Then off the hospital for a lumbar puncture, blood test & 5 Day’s of infusion – apparently to see if I have MMN.

    Hoping I do as it is treatable. Only 9 days since the infusions, so probably too early to notice any change. I read that 4-6 weeks is the normal time span.

    Anyway, hoping for a firm diagnosis, whatever it is, so I can get on with dealing with it.