Nvarennikov
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February 18, 2017 at 9:51 am
I have medicaid through humana. However it’s barely medicaid. Its the medically needy variety, basically catastophic insurance. Unfortunately i called them yesterday to change my pcp and they are having a disconnect with medicaid. Humana is saying my policy was cancelled some time ago, even though they were just billed and accepted billing for my er visit on the 2nd. So I’m in limbo. However, symptoms are now retreating slowly. Feeling is returning to various sections and my right leg has regained a little strength. I am still looking into this and need to get a diagnosis if possible, especially if it does end up being CIDP/MS or some other horrible thing that will require regular medical management. Once i get medicaid straightened out i will continue to look into what happened and update. But as with anything involving medicaid, it may take a while. Thanks again.
February 15, 2017 at 10:07 pmJust an update. Went to my pcp. He said it could be GBS or MS or a number of things. Said he would get me a neuro. I called today because i hadn’t heard from him and they said they were having trouble locating someone to accept my insurance. Big surprise. Symptoms still remain but progression seems to have slowed, but that could be wishful thinking. However, i came across something called Babinski’s sign. Its a fairly simple technique to identify issues of the spine and/or brain. It is supposed to indicate a problem in the CNS as opposed to the PNS. I had my wife perform it on me and got a positive reflex in both feet, even the one i haven’t been able to move since the 3rd. So now I’m wondering if it isn’t more likely to be MS related. I did locate a few case studies wherein patients had Babinski sign with GBS, though they didn’t know why this was, as it is typically a CNS damage related reflex. So for now I am still stuck in limbo. Considering another useless trip to the ER as my symptoms are certainly much worse than the first visit, but I haven’t quite brought myself to do it yet, as they have repeatedly told me this is neurological and therefore non-emergency. I’ll post another update when I know something more.
February 9, 2017 at 9:08 amI suspect you’re correct. I only put it under the CIDP section because this is the second event, and as I understand it you’re more likely to get CIDP than Guillain Barre twice. But until I can get the ER to recognize it as an emergency and admit me, there isn’t much i can do. On the positive side though, progression seems to be slowing. Yesterday there was only a minor spreading of numbness, and today there hasnt been any noticeable change from yesterday. Motor dysfunction is so far still limited to my right leg. Thanks, for your input though, I am of the same mind.
February 7, 2017 at 4:30 pmDefinitely, thank you. May I ask, did you end up being diagnosed with GBS or CIDP? I’m absolutely keeping the appointment. There are too many variations of neurological malfunction for me to have any clue what it truly is, especially when even the same one can hit two peopke completely differently. It’s certainly going to be a pain to get into a neuro, but I’ve got try, especially if this is a chronic problem rather than a one (or now two) off thing. Thanks again.
February 7, 2017 at 2:57 pmBy the way, does anyone know if GBS or CIDP are diagnosable when symptoms have retreated? Assuming this were GBS and it runs it’s course without hospitalizing me or before getting a diagnosis, is there anyway to find out for sure thats what it had been once it was gone? Alternatively, if this is an acute onset CIDP, and assuming it remits without hospitalization, is it still detecable after the fact? Or do the symptoms need to be active in order to confirm it through testing?
February 7, 2017 at 12:07 pmYea it has been a pain. I live in florida. Im still keeping my appointment for friday to see if I can at least get started on the process. Im keeping a close eye on my symptoms and have been keeping a journal of them since it began so i could monitor the progression. Progression seems to be slowing and I’m approaching the typical clinical nadir for GBS (assuming thats what it is). For now my left leg still works, but its getting tired of doing all the work. Ive already determined that the faintest hint of further paresis or breathing difficulties will result in a call to 911. Thanks for the response, I’ll be sure to post an update as soon as there is one, hopefully a positive one :).
February 6, 2017 at 3:53 pmYea, I’m going to see what the doctor says friday and go from there. He seemed in favor of getting me a neuro referral last time, but for whatever reason he never followed through. I never pushed the ussue with him because it wasn’t long after my visit with him that my symptoms spontaneously disappeared. I attributed ut to a mild GBS and just assumed I got lucky. Not thinking that so much anymore so this time will be different. Thanks for the reply.
February 6, 2017 at 2:45 pmThanks, yea I’m working on it. Got an appointment with my pcp for the end of the week (earliest possible). Well see what happens. Thanks again.
February 6, 2017 at 1:06 pmYea, he’s not the greatest, but he’s the one approved by medicaid. I don’t know why he never responded. I’m now attempting to get back in to see him. I’m just concerned about the “what if” of this becoming more serious before I’m able to see him. If it were guillain-barre isn’t that considered a medical emergency? Everything I’ve been reading says get to the ER if you’re experiencing symptoms of xy&z. Hopefully you’re right and this isn’t something as serious as GBS or CIDP. Thanks.
