MattN

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  • MattN
    July 25, 2014 at 4:45 am

    Thank you GH. She did have a spinal. As far as I know results were for GBS. I do not know if they tested for CIDP too. Sounds like there are significant variations in effects, lengths of time, recurrence, etc., in what the affected person may experience for either, and MFS. Apparently there may be 2 neurologists on her case.

    Thanks again for the feedback, and the link to the book.

    Matt

    MattN
    July 24, 2014 at 3:25 pm

    Thank you GH. Her Dr. is a neurologist who said he treats about 2 dozen cases a year.

    I will look for the book you refer to.

    Can you or anyone on the list point me to resources that discuss the likelihood or commonality of progression, that the symptoms or effects might get worse before they get better? (E.g., she can walk now and is not paralyzed and does not need assisted breathing. Might the disease progress during treatment and she might end up with paralysis, and needing assisted breathing?)

    Thank you,
    Matt