Thanks Jim LA!

I am looking over the info now. I guess my concern is that sine I’m currently undergoing treatment, if the new employer’s insurance could deny it since i already have a diagnosis

I received my initial diagnosis of cidp from my Dr here in Chicago. Her conclusion was based on my emg and slightly elevated levels of protein in my spinal fluid. She herself thought some of the damage could have been from complications from the Chiari. She sent me to Mayo in Rochester Minnesota to get another opinion. I was there 5 days which I understand is common. During that time I saw Dr Tracy and her attending physician. I completed emgs, a nerve conduction study, and MRIs of my neck and spine. They wanted to do some type of fat aspree test and a new spinal tap, but I was out of time and needed to get back to Chicago. I never got an official DX of cidp, but they shared my Dr’s initial theory. My Doctor had sinnce talked to colleauges who debunked that theory.

My symptoms have gotten wor=rse, so I need to go back, but I’m worried they still won’t be able to pinpoint the issue.

Ok. I just got my official appeal from the third party (AllMed) They upheld my insurance’s decision to deny ivig> They said that my diagnosis doesn’t fit the criteria for cidp. They said my diagnosis is more in line with brachial plexitis. Further, it says that this condition does not definitively show(based on clinical trials) helps people with brachial plexopathy.

What is brachial plexopathy.
? Is this a different thing, or just a catch-all term that includes cidp? Also, My insurance says this decision is binding. Where can I go from here? The letter says I can file a lawsuit, but how can I get past this? What good would a lawsuitt do? They denied my appeals 3 times before this. What do I need to show them to get a different result?

Also my doctor mentioned doing a nerve biopsy, but she wanted to make sure the muscle in my hand was dead, so s not to damage living tissue.

Thanks! I’ll look into those resources in the morning. To answer your qestion, I am on a group plan PPO through my job. I have multiple family members on my plan. I am in cook county

Hi All. Thanks for responding. I have Cigna here in Illinois. They also require a pre approval which my Dr filed. It was denied. They sent a gigantic packet explaining the other tests needed. We appealed, and did a peer review, they still denied it. I have done numerous tests including a spinal tap and mris. We also got a second opinnion from a nuerologist from Northwestern who also concluded the need for ivig. How else do I show that I have cidp?

W