MACKAY1

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  • MACKAY1
    August 29, 2014 at 9:53 pm

    I am so glad we found each other through this site. I’ve been shopping so my legs are weak. I just wanted you to know I will think of all the questions to ask him. Basically me new neuro wanted a history from doctors since and during the GBS, which sounds strange to me and I’m going to check before my visit.As probably with all of us, my records are the size of a large novel You know the saying “through sickness and in health” about marriage ? This is your sickness, and I know for some women( it’s the mother instinct ) we hate for anyone else to take care of our kids. If a neighbor or friend says what can I do , let your answer be”could you just even watch one of the kids for an hour”? People sometimes say can I help , just to be nice, but the sincere ones you will recognize from your heart. Til tomorrow, try and sleep even an hour later.

    MACKAY1
    August 29, 2014 at 10:40 am

    Wow, after reading your post it reminded me so much of myself and my “journey” while contracting the disease, the hospitalization,symptoms, etc. Like looking in the mirror just minus the pregnancy. The fact they are just recently knowing how to to test for it, along with the care you need is frustrating. I am now going through I guess what they call a flare up time, after doing some research it seems more like CIDP, I have now made an appointment with a new neuro.I was just surprised that it took a year after the chicken pox for you to actually come down with GBS. After the chicken pox mine went right into the GBS.In a matter of hours I went from not being able to lift my arms to full blown paralysis and a coma. I give you such credit for having to go through it pregnant. Anything at all you need to ask , please don’t hesitate. There are people on this site that have an abundance of medical knowledge, and all have their arms open to help, give comfort,and share their experiences. Hopefully we can talk more.

    MACKAY1
    August 24, 2014 at 8:46 pm

    I had my bout of GBS 20 years ago. I was left with a lot of weakness, probably the same of all of you ~! My question is just lately I get the shakes in my hands to the point I have trouble putting the food on my fork. I get hot frequently and then it goes away. Any one else in my boat ?

    MACKAY1
    August 20, 2014 at 12:08 pm

    I am a post gbs patient of 20 years. I am now having shaking hands and legs. I also have restless leg syndrome. Just wondering if anyone else has these symptoms ?

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