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  • May 4, 2017 at 3:47 pm

    any advice on how NOT to be discharged too early in case that is an issue again for us?

    May 4, 2017 at 3:10 pm

    Thank you for your response
    the doctors have told him that he fits somewhere between GBS and CIDP. Initially, his neurologist said he presented as classic textbook GBS but the weakening at 4 weeks wasn’t common
    They have started IVIG again today. I will know more when I can see him this evening. I am not sure why they didn’t think a regimen was needed other than the doctors admitted he hadn’t reached his plateau when they moved him the first time.

    thank you again