Sorry for the lack of information. The tests recommended are nerve conduction velocity and EMG. I was just wondering if these additional tests give any new valuable information since I’ve been definitely diagnosed with GBS.
If I get information that helps with my treatment, then it makes sense. But if all it does is reaffirm the diagnosis, I’d rather not go through it. My neurologist just said he would like it done. I’m curious about what others have experienced.

Thanks Jim,

I looked for the product online. Do you know if they changed the name to “Restless Leg Relief”?
I’m sorry to hear that CIPD effected you so severely. How are you doing?

Electra, thank you for the great advice. You really helped me better understand how to work through this recovery.
Lol about the magnesium! While unable to sleep due to RLS, I’ve been researching supplements and spent way too much money online ordering magnesium, B vitamins, melatonin …….

I’m almost embarrassed to talk about my GBS, as I read about what so many in this group are going through.

This past Feb. 14, I went to work after experiencing several days of increasing weakness and numbness. To get to my classroom on the second floor, I had to hold on to the bannister with both hands to make it up the steps. Just the day before I walked up with little thought.

A colleague of mine had GBS many years ago. She was telling us about it as we all talked about the severe effect the flu was having this year. Her experiences sounded similar, so I got onto the computer and looked up the symptoms. It was what I was going through, exactly!

A colleague of mine drove me to the emergency room and within 12 hours, I was X-rayed, MRI’d, spinal tapped and hooked up to my first course of IVG. I was given a room on a step-down unit where I was closely monitored and assessed every two hours. They also encouraged me to walk a lot, which was not easy, but necessary to keep my muscles strong. Every doctor, nurse, therapist etc. who came in told me how fortunate I was. Believe me, I am extremely grateful and humbled.

It’s now 14 days later and I am home after just 5 days in the hospital. Walking is hard, and my hands don’t work very well, but I realize how much better off I am than so many others. From everything I read, recovery takes a while. I really don’t feel much stronger, but definitely not worse. Being patient is difficult though!

Asking questions on this forum makes me feel almost guilty. GBS is so much milder with me than with most others. But if anyone can give me some ideas, some suggestions, I would really appreciate it. How do you decide when you can drive? Go to work? How hard should I push myself? There probably aren’t any definite answers to these questions, but I’d love to get ideas about how others have worked their way through this.

Lisa