Thanks for your responses. I dropped the ball and wasn’t a good advocate for myself. I just got back from the ER and the doctor didn’t think I had GBS and couldn’t find anything and I didn’t challenge him on it. I guess my symptoms weren’t severe enough to warrant further treatment. Its hard to argue and demand something from an ER doctor who isn’t specialized to diagnose it. Plus it been almost 2 months since the symptoms started and the PN could have many causes which they aren’t set up to determine. I haven’t even been diagnosed with anything yet. I’ll wait till next friday and push hard with my PCP. Im so frustrated with the lack of understanding and urgency. I feel so stuck. For the record my symptoms come and go throughout the day. Sometimes I feel nothing and other times its very uncomfortable but never excruciatingly agonizing. At the ER I didn’t actually feel so bad so it was hard to communicate the emergency.
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