Hi Amber. Sorry i did not reply before but i think was too engrossed in our son’s condition. Your son Ethan got diagnosed while we were being discharged for the same condition. Hope your son has now improved. How is he? Mwaniki has improved greatly. He is now walking on his own though not very stable as any distraction makes him fall. He is also now attempting to jump though his legs are not getting over the ground but we just encourage him and tell him ‘yes, you are actually almost off the ground’. He misses doing all his previous activities and sometimes questions why the disease just selected him among so many children. We understand what you are going through right now. Am also goggling searching for diet to feed him on. Lets trust God for total recovery. If Dee’s five year old is running all over again, even our kids will too. All the best.
Regards,
Jyn (Mum to Mwaniki)