Jazz

Your Replies

  • August 20, 2016 at 10:34 pm

    Thank you all so much for your honesty and openness. Admittedly, I took a break from the forum to focus on my mental health and decided to turn back now to report that I am feeling better. I no longer cry each time I think about what I am going through and some of my physical symptoms are diminishing, too. Like all of you, I continue to struggle, but now I am hopeful and excited about the future — thank you for reminding me that I am not alone and that I have a very long road to recovery ahead. I hope one day I can respond to a post and give others the hope and encouragement you have given me.

    June 28, 2016 at 3:25 pm

    Thanks so much for responding, Jim!

    To answer your questions: I had 5 days of IVIG and I am currently taking Gabapentin (1200 MG/day). I certainly suffer from a number of lingering symptoms — mostly fatigue, pain, tingling, loss of sensation/numbness, etc. — but the 3 I described caught me off-guard. I am glad to hear that they are “fairly typical”.

    Thanks, too, for your honesty and your encouragement. I know it hasn’t been that long (it’s been 8 weeks since I was admitted to the hospital) and I need to keep plugging…