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  • October 8, 2015 at 8:46 am

    Good morning! Have they done a spinal tap? Usually that will show heightened protein which will confirm GBS. I’m so sorry you are going through this, it is a nightmare! My 11 year old son was diagnosed in January. If your doctors don’t move fast please go get a second opinion, time matters with GBS. Do not let them shoo you or pacify you with fast talk.

    February 4, 2015 at 11:49 am

    Dawn I thank you as well for your detailed journey! You also have helped to restore my faith….it hurts seeing our children like this. Unfortunately the future is not predictable with this thing! I have to be strong like you…take the lumps and the bumps, the disappointments and the emotional roller coaster rides. I thank you a million times for your support, I am sure I will be calling on you at some point for some support. Yes I keep reading that because he is young, he will bounce back….I am hopeful and holding my faith.

    February 4, 2015 at 11:44 am

    1617novakn THANK YOU SO MUCH! Your post was God sent! I needed to see your post to help me through the tough times. I have read it maybe thirty times over and over, you give me hope and you give my heart a break. I am so happy that you have such an amazing testimony! Thank you so much for brightening up my days and helping me with my faith. You are amazing and good luck on your future marathons! May God continue to bless you!