Thanks, Gary, for the words of encouragement. However, I’m only asking about these specific symptoms because I’m unsure the GBS diagnosis is correct. Both my neurologist and the GBS medical advisory panel seem to wonder if the “numb butt” symptoms are caused by something else. My neurologist feels maybe my GBS diagnosis was incorrect (made originally by another neurologist in her practice), but she has no other theories to offer. So I’m panicking that I should be doing something different and might be missing a window of treatment.

I have done hundreds of searches, and this is the only posting that deals with what I am experiencing. Constant “wedgie” feeling, spasming tension on back of buttocks, up right torso and down inner thighs – as if I’m wearing a thick sanitary pad. Definite feeling of being off-balance when sitting or lying down. I’m exactly four months out from my GBS diagnosis. Hoping to feel some improvement soon. Can anyone give me some hope?