Eviatar Kipnis

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  • Eviatar Kipnis
    February 23, 2020 at 3:38 pm

    Hello Rob
    Until a year ago I was treated with ivig
    I sufer rash psoriasis like in legs in hands and back.
    Now I’m treated with weekly pex And take gavapantin. I have no rash at all.
    If you read the ivig information page, it is written that psoriasis is a known phenomenon.
    Try change ivig firm, it might help
    My Dr say i beter sufer psoriasis then cidp

    Eviatar

    Eviatar Kipnis
    December 16, 2019 at 2:25 pm

    Hi Chirpybird

    I would recommend that you do what your Doctor says..
    I am 61, Cidp started 2 years ago (2.5 years after GBS) and was treated with IVIG evry 3 weeks.
    after 1 year tingling started again, and my Dr tried 60 ml prednizon daily. It whas a disaster. After 2 months in hospital I am on weekly plex and I can’t see the end.
    As long as it works (and it seems to work well for you)- you better stick to IVIG.

    Eviatar Kipnis
    October 30, 2019 at 3:46 pm

    Hi Sandra
    I have good experience with PE. It helps me in times when my symptoms are getting worse. It stabilises me in terms of strength and sensory symptoms. In times of crysis I got 5 PE treatments within 10 days and It is very effective. Right now (and once before) I get PE once a week to prevent deteryoration. The only side effect I experince is being tierd afterwards. After a short nap – I feel OK.
    All the best
    Eviatar