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Update:
I just came back from visiting my brother in Venezuela. This month will be two years since he was affected with the syndrome with very little movement recovery.
In October 2019 I saw a Ted talk from doctor Terry Wahls about how she got out of Multiple Sclerosis by changing mainly her nutrition https://www.youtube.com/watch?v=KLjgBLwH3Wc . I got inspired and learned more about it, changes on diet, nutritional supplements and daily therapy along with good sleep habits, etc.
I am happy to report that my brother started on new diet and supplements at the end of November and he has shown an important change in terms of his energy and strength. He is now able to stand up with help and support on his knees and keep his weight body on his foot for brief time. He also started therapy in a pool and can at least do a few steps in the water. I am very hopeful that the changes directed to strengthen his immune system and reduce inflammation will allow him to achieve progress in the next few months.
I will post an update then.
Take care,I understand, my brothers last test for nerve conduction was at the year. Might be a good idea to have another although I am not sure if it will really be useful to know…. He had today a therapy in a pool and it is definitely showing some improvement. Do you take nutritional supplements? My brother is very thing so we are trying to give him a good nutrition and healthy diet. He just started on gluten free and sugar free as they contribute to inflammation and takes supplements like Vitamin B, turmeric, CoQ10 and fish oil. I have all my energy focused on anything I can find out to help him on his efforts.
Wow Richard! Thank you very much for sharing your story. it is great to know that with time and hard work it can keep improving.
Best regards,
ElviraThank you sooo much for your kind reply. I am trying to figure understand other cases as references since it seems that my brothers case is slower than the ones I have read about.
We are still with energy, giving him the best possible care, nutrition and physiotherapy but any word and advice helps.
Cheers,
ElviraHi Electra:
Hope you are doing well. My brother had a severe case of GBS and spent 6 months in ICU with respiratory assistance.
He was discharged from the hospital august 2018 and still does physiotherapy 5 days a week with very little improvement.He cant stand or close his hands and needs assistance for all his needs.
How long were you actually unable to stand or use hands?Thanks,
ElviraHi Johnor:
Mi brother was diagnosed with GBS on February 2018 and spent 6 months in ICU with respiratory assistance (while that time he had physiotherapy)
He was discharged and in August 2018 and since then continues the therapies and care. He has recover very little movement and cant even stand or close his hands.
How long did it take you to recover? Is there any information you advice me to use to help his recovery?
Thanks,
Elvira