Your Replies

  • November 13, 2016 at 3:37 pm

    I wonder if anyone has experienced this, I have symptoms and they are worsening but my EMG does not show it. I have internal shaking and muscle twitching and the only thing that helps is holding my arms at my sides tight. I struggle some days with a necklace.clasp or intricate type things. I started IVIG and this last time or my first dose after the original load lasted 2 days. My neurologist has no idea why and has not much to say. Anyone else have this? My legs twitch and I have balance issues.

    October 16, 2016 at 12:49 pm

    I was diagnosed about 1.5 years ago with CIDP. It was a long process… since then i have had problems with my legs feeling tired and weak and my hands and arms feeling the same. They vibrate internally and will shake externally too. Drives me crazy. I started IVIG last week and i feel like the shaking is worse not better. Did anyone else have that? Do you have any memory loss?