Your Replies

  • January 11, 2018 at 9:44 pm

    My husband contracted GBS 22 years ago. Fortunately he was diagnosed with in hours of the onset of weakness. With IVG treatments after a spinal tap confirmed the Drs. Unfortunately my husband has been challenged for years now with reacurring weakness. We live our lives as normal as possible but the reality is GBS is different for all who contract the syndrome. As my husband ages his pain is mostly felt in his feet because his weakness in his legs require him to wear braces. Get another opinion if you are not comfortable. The new normal for you may change. The GBS Symposium in or around 1999 was an eye opener. They had wonderful professionals that could answer most questions.if you get a chance to attend,we found it helpful.
    Stay positive, it is helpful in your journey.

    January 3, 2018 at 8:28 pm

    Get a second opinion, by all means. My husband is getting his third opinion this week. As age sets in and after 20 years since the onset of GBS his symptoms change, mostly feels like he is getting weaker, but has not had any problem with his eyes.
    Hang in there, hopefully you have a good support at home.Take care

    January 3, 2018 at 7:05 pm

    It’s hard to watch our husbands struggle with GBS. Stay positive and definitely read everything you can.knowledge is very important.
    Everyday is a different day. Some better than others. My husband was 48 when he contracted GBS. We had just moved on to 5 acres of land. For 20 years he has been working around here, not accomplishing alot at times but our husbands needs projects to keep them out of depression. Life is good, even though GBS is always close by we feel lucky. It’s a life long adjustment. It sounds crazy but enjoy the journey and it’s challenges.