cidp3

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  • cidp3
    March 18, 2014 at 6:15 pm

    JK thanks for the info, I got a loading dose twice a month for the first 3 months and the rest of the months I got 72gms of Carimune once a month. I’m not sure if that is a lot or not. My MRI results showed abnormal enhancement of my optic nerve, which is probably optic neuritis. I will be seeing my dr this week. You would think the IVIG would have helped with the eye problem, but I see what you mean regarding people getting or not getting better with the ivig.

    cidp3
    March 18, 2014 at 6:09 pm

    Jim-LA Thanks for the contact information

    cidp3
    March 18, 2014 at 6:09 pm

    Hi GAvol,
    Thanks for responding. I have never tried another treatment. I’m just unsure why I am doing any treatment at all if I was stable to begin with.

    cidp3
    March 6, 2014 at 3:48 pm

    Thanks Jim-LA for the input. I think you gave me more information than my neurologist has given me. He would say it’s due to the CIDP, which doesn’t make sense because shouldn’t the IVIG be helping with CIDP symptoms. Anyway, I reside near Denver, CO. If you can think of any providers in that area it would be greatly appreciated.

    Thanks GH for replying, I agree with you regarding the second opinion. I have been currently trying to seek a new neurologist but it is hard to find someone who has expertise is this area.