Charles

Your Replies

  • May 29, 2016 at 11:52 pm

    Mickymarie,I can’t remember the specifics that my Neuro supplied, but I had an EMG and NCV along with my lumbar puncture. I was originally dx’ed with cidp in 2003 at Emory in Atlanta. At that time my symptoms were mild and I did not receive any treatment. I think my Nuero forwarded that original diagnosis as further support of my having cidp.
    I believe the Peer to Peer conference call allows the Doctor to discuss the case with a practicing Doctor. Once that happened my IVIg was approved. I live in South Carolina.

    I ended up not getting my IVIg through my UHC plan. I also have a CareMark / CVS pharmacy plan. Through my own research, because no one ever told me, Care Mark has a specialty Pharmacy plan that includes IVIg. I got my IVIg through CareMark. The condition is that you have to use their Home Health Service, meaning the infusions are done in your home, and they provide the Nurse to monitor and administer the IVIg. Though I was a bit apprehensive at first, I did not have any problems, and my nurse did a great job. I would do Home Health again. There was a $10,000 out of pocket difference by going through my Pharmacy plan instead of my UHC plan. You might want to see if you have that coverage. I hope this helps.

    May 28, 2016 at 10:31 pm

    I also have UHC, and they are difficult to deal with. I had a negative lumbar puncture in 2008, when my Neuro first prescribed IVIg, and they denied it. My Doctor had to send additional test results, and push for the treatment,but they finally approved it. Within months I was I was in remission and went 7 years without any type of treatment.
    Fast forward to July 2015, and once again CIDP rears its ugly head, and my Neuro request for IVIg is again denied. He requested a Peer to Peer conference call through UHC, and they finally approved a 6 month loading dose of IVIg.
    They do not make it easy for you though. Keep fighting.