I usually see improvement in motor skills/functions around day 2-4 with more improvement over 7-10 days. Around the last 3-4 days of cycle I can notice decline…sometimes none, sometimes mild, and sometimes moderately pretty quick over those few days. I lately am noticing what seems like more chance of fatigue but not always just like the post infusion day headache.

Lumbar puncture wasn’t as bad as all I had heard and anticipated, (although I have kind of a high pain tolerance too) but if I had it to do over, I’d have told the resident and her observers who came in and guaranteed they had plenty of experience to get out and take me to interventional radiology. They tried twice and failed each time before I said enough. IR was a way better experience although I think the first attempts contributed to a not as “clean” report on the LP, but results were indicative of CIDP. A little headache afterwards and had to lie flat on back for a couple of hours.