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  • May 28, 2018 at 1:14 am

    Also, who all has had pain with this? Mine gets to be debilitating by the end of the day and I can barley walk or lift my arms unless I don’t do a whole lot throughout the day.
    Thanx in advance!

    May 28, 2018 at 12:56 am

    How quick was your deterioration. I ask because I have noticed that my front hips are now hurting, making walking feel…. Funny I guess is the best way to describe it.

    May 28, 2018 at 12:53 am

    Thanx Buzz. I’ll check into that!

    May 27, 2018 at 1:47 pm

    So, yes… Mine started similarly. A variety of mei’s and such…. Finally to have 1 neuro tell me it’s diabetic neuropathy…. Well, ok so my numbers were slightly high. So then another wave of pain hours me and this neuro tells me that it’s a reaction to my med.. I say no, I’ve had this before and he dismisses me. So 2 weeks later, I’m crying and talking with my wife, telling her (like I have told all the docs), that there is SOMETHING going on with my body… She says get a second opinion. So I did…. This neuro, (thank God for him) actually listens to my whole story, reads my entire list I made of my symptoms with a timeline, and agreed with me…. There is something else going on…. So after 2 days of testing, 1. I don’t have MS… 2. I DO have a brain! 😁 3. I have elevated protein in my CSF and other markers indicating I have CIDP… So will be starting IVig hopefully within a month, especially since the 6 week apart nerve conduction studies shows deterioration. So, I hope this helps you and your situation. Good luck in getting the answers you seek!

    May 25, 2018 at 2:13 pm

    Thank you LWolf. Yes, I know I must get the treatment. The most embarrassing thing with this so far is that I have wet myself, twice over the last 3 months. I can’t believe that… I have been dealing with this for 2 to 3 years, and has only gotten worse. I have really noticed the rapid decline over the last 4 to 6 months. I’m afraid to get out of bed in the morning because I seem to have a new symptom every few days!