Dear Kim’s mom,
I know what you are going through.
PT and OT were hard for Becca too. The days that Becca had PT and OT her brother and I tried to make it a day out. We would go to the mall and walk (It is in the 100’s here in the summer.) Some time the therapists would let her brother join in on some of the PT games. One of the therapists suggested setting goals and rewards for each accomplishment. That worked with the big things, like walking and learning to more for her self, becoming independent again.
Also, when she was in hospital, Becca asked for a puppy. (The kids had wanted a puppy for about a yr).
The puppy was a good incentive. We told her she needed to get strong enough and work hard to be able to raise and train a puppy. You know a puppy at that time was the last thing I really wanted, but I am so glad we got the puppy. She has been a blessing to our family. The dog has become my watch dog. She watches everything the kids do. She also sleeps with Becca and keeps an eye on her so now I sleep better.

Last year I was contacted by another mom through GBS foundation. Since then our daughters have been pen pals. I know for Becca knowing another kid with GBS helps getting better too. It also helps the moms.
I read your post to my daughter and she would love to be a pen pal with your daughter.
Let us know.
Just know you are not alone.
Nancy and Becca:) 🙂