AlisaMeany
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August 9, 2014 at 8:23 pm
Hello again,
Yes, been through 2 Swedish hospitals here, they are good, but still couldn’t make a diagnosis — I guess we just have to keep searching for a neuro, one that is perhaps willing to try treatment first… argh…
thanks for all your help…August 9, 2014 at 11:43 amHello,
Thank you for your reply…
No, I have not had a nerve biopsy done… I had just one spinal tap, but am not sure what the actual result was, just that it didn’t show up as conclusive to anything – I actually cannot have another as that one didn’t go well at all, and had some real bad complications unfortunately :(….
I am near Seattle here — been through the major hospitals here, but haven’t gone to a Center for Excellence — with all tests being normal, am not sure what more they could do??? It would have to be diagnosis based on symptoms alone….
