Ali2525
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April 24, 2016 at 3:54 am
Does remission mean the symptoms totally go away? And do patients stay on treatment in remission? Ali
April 24, 2016 at 3:53 amI was diagnosed with CIDP in Aug 2012 I don’t think I’ve ever been in remission. I have nerve pain constantly in my lower legs (coldness blue toes sometimes) numb feet and weakness in my hands and feet. Some days my body moves better than other days I do experience aching hips and lower back pain. Does remission mean the symptoms totally go away? And do patients stay on treatment in remission? I exercise and enjoy life with my 3 sons and Jay Mountain Biking, walking our dog, swimming and yoga. I do have regular rests as part of my day. Im I. 55g Ocyogam each 3 weeks methotrexate 20mg and Predisone 5mg. My strength has improved since beginning steroids and Methotrexate last July. Ali
April 24, 2016 at 3:25 amI had many tests and nothing showed up although it was thought possible CIDP. I had a Sural nerve biopsy and now am left with permanent numbness on the top of my left foot also my left foot is much weaker. I would not recommend to have one if you can avoid it. The test did not give conclusive results for me. I had it more for my peace of mind but if I had my time over would choose not to go that way. CIDP is very difficult to diagnose. Ali
