afield
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June 15, 2022 at 12:22 pm
Annnnnd…looks like it’s motor neuron disease. Great super specialist, very professional and kind. Still a bad break, but not a surprise to any of us. A long and winding multi year path to diagnosis. I do want to make sure the Lyme is clear of him still, close that issue out just for best practices.
June 14, 2022 at 7:25 amGood morning!
We live near Washington DC, just outside to the northwest. FIL is a patient at Kaiser Permanente, I must say based on a few peer reviewed journal articles I read they are following the dx workup properly.
In a bit of good luck, his neuromuscular specialist appointment was moved…to TODAY! So we are headed there in a couple hours actually, down to Mclean VA.
-We will make sure we raise the Lyme issue explicitly again.
-We will tell Kaiser we want to see a CoE. They are medicare-advantage patients, so Kaiser can send him where they need to outside their network. The nice thing is the Kaiser center where they live in Gaithersburg MD is right near their house and has 95% of what they need right there. Some other services are in other regional locations. (I don’t ‘love KP’ per se, but they treated my mother in law successfully for Stage 1 breast cancer last year about this time, it went rather smoothly.)
