Your Replies

  • April 14, 2011 at 11:25 am

    Sending my congratulations, John C.!

    April 2, 2011 at 8:35 am

    You have a fighting spirit and a very perceptive and realistic nature. I can see you are tackling all of this head on and I know you will be victorious.
    I can’t think of any questions at the moment, but I’m wondering if the chemotherapy could possibly have a healing effect on your other issues.
    I’m with you in thought and prayers and I admire your great attitude and the way you are accomplishing a comeback in health and strength while coordinating more than just one challenge. You’re tackling them all in a timely fashion.
    God Bless You!

    March 26, 2011 at 8:48 pm

    We are all unique individuals and no two of us are alike. Even CIDP has variants and certain subtypes aren’t even defined. Individual responses to therapies are variable and cannot be clearly predicted. Failure to respond to one treatment doesn’t preclude benefits from other options such as immunosupressants, drug combinations or Stem Cell Therapy. Treatment plans must be individualized for each patient. Medical circumstances and cost may influence choice of treatments.
    It seems, Cory, that you are proactive in your healing and continully searching which is a good, positive sign. The right Doctor who can precisely administer the correct therapy and proper treatment is a Godsend.
    I will keep faith that you will experience a Full Recovery!

    March 19, 2011 at 2:11 am

    What helped me most with my Type 2 Diabetes were the online forums. Diabetes Daily Forums is one my favorites. I’ve even learned a lot from the Type 1’s and I’ve found out about different foods and tasy recipes.
    Dr. Bernstein’s “The Diabetic Diet” and “Diabetes Solutions” can be read online or you can buy the books. Jenny Ruhl’s “Blood Sugar 101” can be found online also. Both Dr. Berstein and Jenny Ruhl have online forums also.
    When I took Prednisone they told me I might have to increase my meds.
    I watched my carbs and checked my sugar frequently and kept the same meds. I kept my carbohydrate intake low and found that certain foods made my sugar spike. All of us are different in our diabetic diets and our individual ability to handle different foods and amounts of carbohydrates.
    My A1C’s high was 6.5 then 6.4, 6.2. 6.0 and my last on was 5.7 as they were weaning me off prednisone. I am awaiting the result of my last test and it’s probably lower, because I have been off Prednisone for 3 months.
    As I keep learning about Diabetes I have found the lo carbing for me works best and Iam creative and selective about my food intake. It makes sense to me that keeping sugars as close to normal as possible and eating to your meter can avoid complications.

    March 3, 2011 at 5:39 pm

    Good Post. I have a long history of eating PLAIN yogurt several times a week. It must have nothing added, no sugar, no fruit for example and I will not eat low fat fat yogurt either.
    It seems that gluten is my enemy and since I haven’t been tested it could be gluten sensitivity, gluten allergy or full blown celiac disease, but I know when I’ve been glutened.

    February 28, 2011 at 10:46 pm

    Hi John!
    That big first step may restore your health and my prayers are with you.
    I certainly hope you are accepted into the program.
    Please keep us updated.

    February 25, 2011 at 9:13 pm

    Hi Fairly Odd Mother!
    Is the twitching new? If so something must have set it off.
    I don’t know what.
    Would some very light physical activity like a short casual stroll in the crisp air help to stretch out some of your muscle aches?
    Just do something easy and enjoyable.
    Sway to the music.
    I want to see you back to photography and digital art, your passion. I will happen don’t give up hope.
    Right now some of this may be just temporary and will go away with the weather.
    My thought and prayers are with you.!

    February 11, 2011 at 11:36 pm

    Hi Anastasia,
    It seems that stem cell therapy makes it possible for nerves with axonal damage to come back either by sprouting or regeneration. Not only Alice, but others have had the nerves return as you’ve pointed out. Hope trumps positive thinking, because the Stem Cell results have shown the dramatic changes that can and do occur. Nerves grow back slowly. Time is on your side.


    February 10, 2011 at 11:47 pm

    Hi Wrtrmom!
    That was an extemely funny post. You’re a gifted comedian and it’s wonderful you’re back to work. You sure must have fun. Acutaly I’m not sure what MMJ is, but I’d sure like to try some.
    Keep updating us with your posts!

    February 10, 2011 at 11:35 pm

    Thank You Jessicah I appreciate your encouragement.
    I cannot emphasize enough though how different we all are with CIDP.
    They don’t usually prescribe prednisone for diabetics, because it can raise blood sugar way up there. My Neuro said he gave it to me after he taked to my endocrinologist who said I didn’t have an advanced case. Also he knew I understood about sugar control and explained I might have to increase my medication although I was very careful with my diet.
    The good news is that I constructed a top-notch diet and every time my prednisone was reduced my sugar readings though excellent to begin with had become better. The last reading while I was on a small amount of pred was exceptional and my next one since I’m off the pred will probably mystify the American Diabetic Association it so good. I forgot to mention I never had to increase my Diabetic medication at all and Now I may be able to decrease. When I started to exercise as my CIDP improved that helped too . I remember falling off the treadmill when I had foot drop, but now it’s a piece of cake on the incline.
    That’s my story and I’ll stick to it.
    I am going to expect the best for you Jessicah. There has to be a doctor out there who can diagnose you and a treatment that will heal you. I watch Mystery Diagnosis and there are many reasons a diagnosis is delayed. It could be a test that needed to be run and was overlooked or a doc cannot relate the symptoms in the right way. Sometimes an internet search by a patient or caregiver can a least provide a clue that defines the disease.
    Keep the Faith, Use your Intuition or do whatever it takes until a healing takes place. I don’t know how to make you feel better, but you seem to have what it takes to find that magic bullet! God Bless your Hubby and Children Too

    February 10, 2011 at 11:02 pm

    About a year ago I noticed my discolored toenails were getting a bit misshaped and Lo and Behold my primary care doc gave me a new toemail polish call Cyclopirox. Today I got a refill from my pharmacist and told him that I hadn’t taken any Prednisone in 2 months it’s clearing up fast and Is almost gone. The good pharmacist said that Pred can cause a toenail fungus which I had suspected all along. Luckily So far that seems to be the only side effect I have from the Prednisone.
    I tried the Vicks vapo rub prior to the topical prescription and also hydrogen peroxide, and it probably stopped some progression. I did not want to take an oral pill.

    February 9, 2011 at 4:36 pm

    Prednisone should not be used if you have certain medical conditions. Prednisone is an anti-inflammatory and like all other drugs and treatments no two of respond exactly alike.
    After 3 months on prednisone I responded dramatically and ALL my CIDP pain disappeared, and is till GONE. Over a 2-year period my Neuro tapered the prednisone slowly, slowly, slowly, and instructed me to take it on alternate days.
    I have now stopped the nasty drug completely for two months. I’m walking around pain-free with good balance. I can run a little, so my cat thought I was playing and bumped into my shin (it hurt) and it was almost a calamity. My neuro said all the rest of the nerves will come back completely and slowly. He doesn’t think I will backslide and those words lifted my spirits sky high.
    BTW I will immensely appreciate any prayers, best wishes, positive energy or blessings sent my way.

    February 7, 2011 at 11:30 am

    My answers to questions 1 – 8 are all negative.

    February 7, 2011 at 12:13 am

    My Locations:
    New York

    It’s possible that genetics could play a role along with environmental factors.

    February 7, 2011 at 12:08 am

    My Locations: