GAT

Your Replies

  • GAT
    March 16, 2010 at 9:10 pm

    I agree with the others. I would serious look for a second opinion. The day my test returned from my spinal I got a call from my Neuroligist. She scheduled my five day loading then my 28 day maintenance. I have my six month schedule planned and doing fairly well. At 21 days I see some changes but can hold out for 28. I told my Neuro that I get grumpy before and a 28 day cycle I know how you ladies feel. See if you can find a Doctor that listens.
    GAT

    GAT
    March 11, 2010 at 10:22 am

    Thank you for this great information. I kelp hearing of side effects and you explained them well. I have been on IVIg for a year and seem to be doing well except weakness. From what you say I will continue my current plan and pray my insurance will not change my plans. You have cleared much concerns. GAT

    GAT
    March 9, 2010 at 8:32 pm

    I am like you and for over a year it seems each day is different. All of my pain started in my groin and lasted for three months. Now it is in my stomach and bladder. lately it is in my feet and hands like the books say it should. It’s just an amazing illness and hard to figure. GAT