Your Replies

  • September 9, 2019 at 11:26 pm

    Lol…made my day…thanks Jim

    September 9, 2019 at 10:20 pm

    Cer100…I am in Montana. Been here 2 years. Insurance is Humana. Took a Pharmacist, a PA, a nurse, a neurologist and their team months to get Rituxan approved…I feel blessed to have them.

    September 9, 2019 at 4:54 pm

    I was diagnosed with madSam about four years ago. Three months ago with the shortage and everything of IVIG I noticed things weren’t quite as good for me. Two months ago I did two rounds of rituximab but see no results yet. My right side is almost completely useless in these last two months so I had a bridge of 80 grams of IVIG 5 days ago. I am seeing no results from the IVIG so far and nothing from the rituximab.

    September 9, 2019 at 4:17 pm

    Is anyone with madsam still on site? I just found this site but I noticed that most of these replies are from 2011

    September 9, 2019 at 3:59 pm

    I was diagnosed with lewis-sumner / madsam about 4 years ago. From my understanding it’s the exact same thing. As everything else on here it’s rare and hard to find any answers. I actually just found this place today and joined