Wondering how much the Mayo Clinic cost?

    • Anonymous
      April 7, 2010 at 6:47 pm

      I was told by my Neuro Surgeon that I need to go to the Mayo Clinic in New York for a neurological consult (CIDP). Being out of State, my HMO won’t cover the visit. I am wondering how much the neurological consult will cost. Just the doctor’s visits. I am going to take all my test results with me and will just be paying the physician’s out of pocket. Anyone have any idea what the average cost for this 2-3 day workup cost???

    • Anonymous
      April 8, 2010 at 12:26 am

      I didn’t know there was a Mayo Clinic in New York…I was only aware of the one in Rochester, Minnesota, and the western location in Phoenix, Arizona.

      It has been suggested that I go to the western location in Phoenix. I was told that IF my insurance would partially cover this visit, that it would take 7-10 days, and my out-of-pocket could easily top $10,000.

      You say “just the Dr’s visits”…I’m wondering who gave you that impression? From my research into going there, I’ve been told to expect that they will not accept anyone else’s test results, will run all their own tests, and form diagnoses only from those tests. They may use other, earlier tests for a reference, but will not simply review others tests and offer a diagnosis. I was told to expect 7-10 FULL days of testing, exams, meetings, etc.

      Maybe I’ve been given the wrong impression; I know others here have gone there, so someone could probably correct me if I’m stating things incorrectly, but it’s what I was told to expect by my doctor, who interned (sp?) there.


    • Anonymous
      April 8, 2010 at 8:59 am

      There is also a Mayo Clinic in Jacksonville, FL. Perhaps your HMO would cover that, you can check their web site for more information.

      Doctor’s in NYC were $500-$750 for the initial appointment a couple of years ago. Any tests ordered are more. If you check your insurance coverage carefully it may actually cover some out-of-state doctors at large medical centers as in-network, even if they initially repeatedly tell you it does not.

      For some plans these doctors are out-of-network, but the insurance will pay a portion if you submit the bill yourself. Tests that they order can often be ordered to providers that make the tests in-network. Just my experience.

    • Anonymous
      April 8, 2010 at 10:21 am

      I have heard a little of both, 2-3 day workup not 7-10, and that they do like to run all the tests all over again. I had called and they said to bring all of your medical records. No presending of the records because there are just way too many people. They have a pretty good website and you can call and talk to someone about all of your questions. You have to register over the phone and get a reference number to make an appointment. You can probably register online too. They told me that if you have a physician referrral, you will get in more quickly, and there is a separate phone number for that. As for insurance, you can talk to them about that or discuss with your insurance company. Also, there appears to be 3 locations: Rochester, AZ and Jacksonville. One other comment, if you have a PPO, I would imagine that your out of pocket costs would only be subject to the maximum that you have, unless they are considered out of network.

    • Anonymous
      April 8, 2010 at 10:48 am

      [I]I googled and I find that there are now several Mayo Clinic locations … but none in New York. The nearest to NY would be one in Ohio.

      I’m like Elmo … I only knew of Rochester and of Phoenix.

      Truthfully … if I was going for the absolute in diagnosis, I’d still head to the Rochester, Minnesota location. For many reasons, not the least of which is the experience and credentials of the faculty.[/I]

    • Anonymous
      April 8, 2010 at 10:55 am

      I agree with you Rocky, about going to the Rochester location. My co-worker told me that they are 10 years ahead of everywhere else in the country. She had a couple brain surgeries there and raves about it.

    • Anonymous
      April 8, 2010 at 5:21 pm

      Hello, My sister was diagnosed by the Dr’s at the Mayo clinic in Rochester. She had to bring her records but was there for 6 days. They did their own tests and she had to see their specialists. I did call them about getting an appointment but you must have a referral to see a neurologist there…no exceptions….just my 2 cents!

    • Anonymous
      April 8, 2010 at 10:19 pm

      You are all right! It is Rochester! 😮 Thanks for all the info! I might check the one out here in Jacksonville. Since it is in state, my insurance will pay!!!!:D

    • Anonymous
      April 13, 2010 at 1:46 pm

      My neuro sent me to Dr. Ayyar in Miami because he did not have faith in Mayo Jacksonville. My endocrenologist likes Jacksonville. Who knows?
      Have you tried Shands in Gainesville, FL.? I saw a Dr. Trigg. I have this vague diagnosis of Transverse Myelitis and some undetected autoimmune disorder. Dr. Ayyar does not think I have CIDP.
      Good luck wherever you go!

    • Anonymous
      May 17, 2010 at 11:50 pm

      I self referred to Mayo Clinic Rochester. I sent a medical history along with my online application. Several weeks later I was notified that I was on a waiting list. Several months later I had an appointment. Yes, they also told told me to allow 5 working days.

      Well, I was there for 13 working days. Total retail charges…..$18,0000. Mind you, almost half of that was for the nerve biopsy. Travel not included.

      Some neurologists also told me ‘skip Jacksonville, go to Rochester.’ Heck, if you only can go to Jacksonville, or Miami do it. Or, start a letter writing campaign and get your HMO’s permission to go out of state.

      Oh, my, you asked how much for a Dr consult. About $300 dollars.

      And then you say ‘…2 or 3 day work up…’ Of course they want to run all their own tests. ‘they’ all do.

    • Anonymous
      May 18, 2010 at 10:55 am


      Did you have to pay $18,000 out of pocket or did your insurance cover most of it?

    • Anonymous
      May 18, 2010 at 11:47 am

      Hello Jessicah,

      In my reply to the original poster (OP) I tried to emphasize ‘…original retail…’ becuase he was talking about paying out of his own pocket. I’m super lucky, or not. I have Medicare primary and my previous employer’s insurance is secondary.

      However, my providers, and probably me too, would be much better off if that were reversed.

      Bottom line, the answer to your question is $1,134.90.

    • Anonymous
      May 18, 2010 at 3:58 pm

      Hello I was very happy with the drs at the University of MN for some of my medical problems. They are a wonderful hospital and explain thngs to you.

    • Anonymous
      May 20, 2010 at 3:08 pm

      Johns Hopkins Hospital in Baltimore is at the cutting edge of Neurology. Their staff is wonderful, and their doctors are on the leading edge of treatments. Baltimore might be a less expensive and easier commute than Rochester. Hopkins will also do all its own tests, and probably require a referral from your doctor. I was treated there successfully and became very good friends with my doctor, who is one of the world’s top researchers on CIDP. According to my doctor, correct diagnosis is a major part of determining treatment, and it is where so many people are ill-served.

      I also know that this doctor is at the forefront of working with the GBS-CIDP Foundation to establish Neurological Centers of Excellence, a program that should be rolled out in the very near future. A total of 7 or 8 applications have been received, and that does not include some of the major medical centers who have not yet applied.

      So, please consider JHH as an alternative. Your out-of-pocket expenses will depend entirely on your health care. My diagnosis and treatment over time carried a huge price tag, but almost everything was paid for by insurance. Since I live near Baltimore, it was all on an outpatient basis. I hope this helps.

    • Anonymous
      May 20, 2010 at 6:20 pm

      Go web up ‘US News and World Report Top Hospitals’ and find the neurological hospitals highly rated…. If I can figger it out, anyone can! But, don’t exclude getting most of your testing done locally. I didn’t have to go to Mayo? I GOT all the testing I needed locally, but some blood and spinal work was sent off to Mayo. I simply lucked out and got good INFORMED docs willing to get to the root of my problems! It took over 16 months and a LOT of tests of all sorts? [from onset to diagnosis] But I never had to ‘leave town’. Mind you, I do live in a metro area not far from other metro areas tho. There IS a big difference in getting to docs to diagnose, because of where you live! Going not so far, might be less cost, and wear-tear on you and those who are helping you get to docs? Do keep that in mind. Also see if you can get a look at the key doc’s resumes? Then web up their names, you can get a grip of what they’re interested in and how they approach their ‘problems’ [meaning US]. IF you like what you read? You mite just be able to ‘connect’. That connection part is hard tho in a mass clinical situation? But candor, honesty, and frustration can help. Truly? GOOD LUCK!