What’s in your GBS/CIDP toolbox?
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AnonymousJanuary 5, 2011 at 2:11 pm
I have found many things to add to my GBS toolbox. Unfortunately, I found most of them by trial and error. What have you found that helps you to function in daily life, cope, and feel normal?
Here’s some of my finds:
Buckingham Easywipe
Rocker Knife
Cutting Board with two dowels sticking up and a corner blocked
Cleaning Wipes (like Lysol, glass cleaners, bathroom wipes)
Front-Zip sweatshirts
Nike All-Sport Over-the-Calf socks
Dr. Scholls (sp?) Diabetic Over-the-Calf socks
Straws (LOL)
Music, music, music
TheraPutty
TheraBandI’m sure I’ll think of more!
Allsmiles :p
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AnonymousJanuary 5, 2011 at 3:39 pm
Drinking straws
Large grip drink cups
Rubber grip bottle opener
Had a shower installed
Shower seat
Hand held shower head
Safety bath mats
Thick leggings for when calves cold
Big fat writing pens
Pull out kitchen drawers installed
Lots and lots of paper towels
Lots of bed pillows for those can’t sleep nights
Zip sweat jackets (several) -
AnonymousJanuary 6, 2011 at 3:23 pm
Removed all buttons and hooks from my pants’ waist band and jeans and put in a small strap with hook & loop fasteners (velcro type)
Added small loops on the pants zippers
got a small bar bell shaped device to turn the car key in the ignition
quit wearing button in the front shirts, switched to pull over
AFO’s. Couldn’t get by without them
A small, fold-able book holder
A grasping cuff with wrist support see:
[url]http://www.pattersonmedical.com/app.aspx?cmd=get_product&id=92394[/url]
I loved this little thing. But, I’m not using it much these days. It is far too easy to over exert the muscles which remain.
By far my best assistive device is…………………….my wife. No, seriously, what would I do without her?
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great thread!
Thanks to Alice and Sophie for turning me on to fresh squeezed OJ. Now I am squeezing for a family of four! It’s a great hand workout!
allsmiles I love your attitude!
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[QUOTE=codystanley]
And a giant mouse called INFOGRIP for my computer.[/QUOTE]
That’s cool!Though we cant afford it we bought a macbookpro and I must say that the ‘magic trackpad’ is great for damaged hands. I see they have them for sale for mac desktops for $69. Steep price but worth every penny:)
keep fighting onward!
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AnonymousJanuary 8, 2011 at 3:40 pm
My GBS tool box consists of….
High top tennis shoes with braces that cover whole bottom of foot up to crew length sock height
arm cuff crutches
socks that go mid way up calf
mainly pull on pants that either pull on or have a tie string or sweat pants
shirts I can pull over head, even ones with buttons only have 1 for summer & pull on fleece zip up shirts leave zipped up enough so I can get my head in
heating pad in summer for back pain or electric blanket in winte
ice packs
extender arm reacher
variety of rubber stretching bands for exercise
shake weight
pencil for typing
home health care aides to assist me & do things I can’t
grab bar to get into shower
shower seat
extended shower on hose
bars on sides of toilet that hook to toilet that make gettin up & down easier
microwave for main cookin
step stool to get into bed
help line necklace , that goes to local hospital 24 / 7
telephones in every room except bathroom
comfortable recliner
ceramics, books & scrapbooking internet to keep me busy
plenty of potholders
fleece blankets to cover me while sitting doin projects
a/c & plenty of fans to keep me from gettin to hot in summer
wheelchair for bad days with GBS or severe back pain
Tv & radio or cds
drinking straws
cups with lids on them just room for straw or drinking water bottle
My best bud ..my cat Zoro who has changed for the better since I came home & have been left with disabilities.. He loves to play, & cuddle with his Mommy (ME) & he is protective of me & my routine & he listens & understands alot !! -
I found that having a 22 year old french live in maid very helpful. 🙂
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