Wanted to share something Emily said today
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May 31, 2011 at 11:06 pm
As I’ve mentioned here before Emily is taking roller skating lessons. Today was the dress rehearsal for the upcoming recital. While I was curling Emily’s hair we were talking & she says “Mom…are you proud of me for skating?” I replied that I was. She then asked if I was more proud because she was skating & has CIDP. I told her that I was certainly more proud because she has come a long way [I]& [/I]I know how hard she has worked to get here.
She then says “You know…some days I forget I even have CIDP”.
That to me is success!
My kid can go about her normal everyday life & not worry about her illness. Of all the things I’ve done wrong in life at least I know I’ve done this one thing right! (GO me!, LOL)
And by the way…Thursday will be her last every 4 week treatment. We’re going to see if she can go 5 weeks now! FINGERS CROSSED!
Hope everyone had a pleasant holiday weekend. We spent Monday lounging by the pool.
Kelly
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June 1, 2011 at 7:48 am
You go Kelly!
As a mom it had to make you feel great when Emily made that statement.
She has come a long way and is able to enjoy her young life.
You have an amazing daughter.Great times always Emily.
Shirley -
June 1, 2011 at 1:47 pm
That is a really positive indication –that she on some days forgets she has CIDP. Great Kelly!
Laurel -
June 1, 2011 at 5:43 pm
Reading your post on what Emily said made my day, thank you.
I hope I can stretch my infusions out too and we’re already discussing it.
Got new [I]IG Living[/I] magazine today and main article is “Lifelong Need for IVIG ?” -
June 1, 2011 at 7:42 pm
So happy for Emily and you Kelly. I made the same remark to my wife Tuesday; then the CIDP flared up again. Oh well, sigh … CIDP hasn’t gone away after all.
My neurologist said early on his goal was to get me to the point where I wasn’t focused on CIDP every day. We’ve achieved that and so much more. God has been very good to me.
I pray that God will grant Emily complete healing and she wouldn’t live a life focused on CIDP.
Gary
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June 1, 2011 at 9:07 pm
Yay Mom!
What a wonderful thing to hear. 🙂
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June 2, 2011 at 12:22 pm
Kelly, that is wonderful! Brought tears to my eyes…that is every parent’s goal right?…to make sure that your child’s life is safe, healthy and happy!! Kudos to you.
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June 2, 2011 at 9:49 pm
That was such a nice post to read—I am glad Emily is doing so well : )
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June 2, 2011 at 11:04 pm
Kelly,
I truly am happy for you, Emily and your entire family. What a precious moment – thank you for sharing.
Wooooo Hooooo!!!!!!!!!!!!!
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June 6, 2011 at 2:40 am
That statement brings tears to the eyes 🙂 I wish for the rest of her days to be so. What joy for you 😀 Thanks for sharing. jz
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June 6, 2011 at 8:55 pm
Thanks everyone. I cannot tell you how happy my girl makes me.
She had her recital yesterday & she did GREAT! I am just SO proud of her! 5 years ago, after getting her diagnosis, I never would have thought she would be able to roller skate & do it well.
Kelly (one proud mama!)
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