AnonymousApril 18, 2007 at 9:10 pm
Hey, I was wondering how everyone gets/got around?!?!
My GBS started 6 weeks ago. I was lucky in it only attacked from my hips down, but I did get the form that attacks the axon not the myelin sheath.
Anyway, I am grateful that I am doing well!! But I can not drive a car, ugh! So I was wondering how my fellow gbs’ers get around when/if they are at this point. I’m going crazy at home. The only time I get out is to my physical therapy appts. or if I ask someone to take me out…then I feel weird about it! (I also have 3 little kiddos that I need a sitter for or take with me!) I live in a very rural area or I’d be hopping on a bus just to get out!
We’ve considered getting one of those handicap hand control devices for a vehicle. Just not sure if it’s worth spending hundreds of dollars on or how well they work – Not to mention my car is a 5-speed, so I’d need to purchase another car or borrow my husband’s when he’s home!!! No, I would not trade my car in, I love my car 🙂 I know my legs will return to normal, right??!!
AnonymousApril 19, 2007 at 6:17 am
I know how you feel, I was in the same position not long ago where I was basically waiting to be able to drive my car. My hubby and I mulled over getting handicap hand devices fitted because I was ready to be more independent and less reliant on others. Even though nobody minded doing these favours for me, I was starting to. As time passed, sure enough, I was able to drive and I haven’t stopped since (hehe) so just be patient, you will get there, your body is just not ready yet. Be positive and remember all good things take time. Keep 🙂
AnonymousApril 19, 2007 at 6:42 am
Hey Rebecca give it time you’ll soon be out and bout . As for the 3 kiddo’s send over I’ll watch them so you can have a day of rest. But that may be difficult I live inMichigan. You take care and rest so you will get better and be able to drive and do the things you want independently. Dawn C.
AnonymousApril 19, 2007 at 12:41 pm
If its only been 6 weeks then give it time, I am sure you will get better still. Be thankful you are otherwise up and about at 6 weeks and hopefully that will be enough to keep you going till you can drive again. I wouldnt invest in hand controls yet anyways. The docs say to expect improvement for a year and even though you can still see progress after that, then you will know what you are basically stuck with at a year because that is the time that progress supposedly slows down quite a lot. My progress is very slow now but I can see some very small improvements since Jan and I am still in rehab, they just cut it down to 2x a week for April. I am a completely different person now than I was a 6 weeks so just stay strong.
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