Trying to get pregnant

Hi Amy,
This is such a delicate topic, the most personal decision one can make. You obviously have many medical issues that foreshaddow a pregnancy but only you can know what you want or desire. I will try very hard to find this members name that I am thinking of, I think she was in a yellow insert of the foundations liason list. Her daughter has cidp and has somewhat of a disability in that she does use a wheel chair for assistance at times. She recently has had a baby. Maybe if I can contact her, I can ask her to speak with you, if you would like.

Do a search on cidp and missed periods, it has been a topic of discussion, maybe you could find some info in the posts that would help. Good luck in your quest for answers to your questions.
Dawn Kevies mom

I have endometriosis as well. It can make getting pregnant difficult but your dr is wrong in that it doesn’t prevent pregnancy. I’ve had 2 surgeries – 7 months apart for my endometriosis. There are about 14 dr’s across the US who specialize in treating endometriosis. You can do a Google search, I’m sure, to see if you can find one near you. I think there is one in Texas, if I remember correctly.

I also have PCOS (Polycystic Ovarian Syndrome) that can sometimes cause women to not have periods. You should ask to be checked for this. Many women with endo also have it. It does make it harder to get pregnant because you don’t know when you are ovulating or you just don’t ovulate at all.

Deciding to have a child is a very personal decision. I can’t imagine trying to make it on top of having your health problems. I will tell you that my best friend has had 2 pregnancies & she’s delivered between 6 1/2 & 7 months each time. I won’t go into details but having a baby that early does put them at risk for many health problems.

Good luck,
Kelly

Sorry, I do not know if CIDP affects our opportunities to become pregnant, but it also took a while for us.

I became pregnant after an laperoscopy, I have heard that it often happens.

I just want to tell that pregnancy and taking care of a baby has been hard for me, but not as bad as feared.

Today I have a wonderful son on eight months, sleeping in his bed right now.

It may be important for you to have people around you to relieve you.

I wish you all the best:)

(sorry my language, my english is quite rusty:eek: )

Here’s a link to a Google search that I did on PCOS. I’m sure you’ll find whatever you want to know there.

[url]http://www.google.com/search?hl=en&q=PCOS&btnG=Google+Search[/url]

I know that you are strong & having an illness makes you even stronger, but honestly, having a baby that early is a hard thing to go through. I know what it’s like to desire to carry a child & to have a baby. I just really hope you know exactly what you are getting into by getting pregnant. I know what my friend went through & at the end of the pregnancy you don’t always end up with a baby.

Good luck,
Kelly

Good Luck Amy. I hope it works for you and your family.
God Bless. tim

Amy, I hope you find what you are looking for. I am glad you are working with a set of doctors you trust and I hope they can keep you and the baby both safe and alive.

We all must make our own decisions. Based on the information we have and our life experiences, we would all choose differently. I may not think for me, if I were in your shoes, that this would be a good idea, but I’ve had four children and based on that experience I apply that to my current decision. You may not have that same experience so you will use what information you can gather to make an informed decision. There is really no right or wrong here. You must do what feels right for you.

I wish you well on this journey. I hope your dreams come true. Take care.

Hi Amy,
Any luck yet, did aunt flow visit again this month? Were you interested in me finding the lady who’s daughter w/cidp had a baby. She is really nice and I am sure would talk to you. She helped me so much when Kevie was first dx. Her daughter was something like 12 or so when dx and is now 23-25? Good luck!
Dawn Kevies mom

Being younger in my days I was Miss Fertile Myrtle. I did lose 3 babies though and that broke my heart. But I had 3 babies also! 2 daughters, 1 son all grown now and married except for 1. 2 grandchildren and have two foster children. Really did not want anymore children after my 3 were grown up. But had a family member get all messed up and she lost custody of her children, My younger sister could not afford taking in all 4 children. So she has two and I have two. Sweey children though and they have adapted to staying here. I hope you get lucky and have a baby! Will keep you in my prayers.